Down syndrome - Resources

disability; intellectual; chromosomal; disorder; Down; syndrome; Trisomy 21; genetic; chromosome; gene; Down's; Downs; handicap; mental; retardation; developmental; delay; speech; pathology; therapy;

Contents

• South Australia
• Books for parents
• Books for children
• General

The resources listed are correct at the time of publication. We can be advised via the 'enquiry form (subject - Links query)' of any changes needed, or if there are any other resources available in Australia not included in this list.

Better Start for Children with Disability (Better Start) initiative. This initiative aims to assist eligible children with developmental disabilities to access funding for early intervention services. Australian Government Department of Families, Housing, Community Services and Indigenous Affairs (FaHCSIA)

South Australia

There are a number of agencies within South Australia that provide programs and assistance for young people and adults with Down syndrome, as well as for their families.

• Down Syndrome Society of South Australia Inc
  Hampstead Primary School, Greenacres
  Tel. 8369 1122
  Website: www.downssa.asn.au
• Early Childhood Intervention Consultants provide information and support for families with children 0-8 years with developmental delay, disabilities or at risk of developmental delay.
  Contact the Child and Family Health Central Office for further information.
  Tel. 1300 733 606.
• Playgroup SA Special Needs Coordinators
  Tel. 8344 2722 
  http://www.playgroupaustralia.com.au/sa/ 
• Disability Support and Services  provides information, support and services to people with intellectual disability and their families.
  Tel. 1300 786 117
  Website: http://www.sa.gov.au/subject/Community+Support/Disability 
• Novita Children's Services assists children with significant and permanent disabilities to access assistance, information and community services.
  Telephone: 1800 337 443 
  http://www.novita.org.au/Default.aspx?p=1 
  
• Carer Resource Centre provides information and advice on available services for carers, particularly respite services.
  Address: 58 King William Road, Goodwood, 5034
  Postal Address: PO Box 410, Unley 5061
  Tel. 1800 242 636
  Website: http://www.carers-sa.asn.au/ 
• Disability Information Resource Centre provides contact details for a number of support groups for individuals with physical disabilities.
  Address: 195 Gilles Street, Adelaide, 5000
  Tel. 8236 0555 TTY 8223 7579
  Country callers: 1300 305 558
  Website: www.dircsa.org.au 
• Gowrie Resource Centre and Bookshop
  Address: 43 Dew Street, Thebarton, 5031
  Tel. 8352 5246
  http://www.gowrie-adelaide.com.au/cms/?q=node/16
• When choosing a preschool or school, you may wish to seek advice from the special education staff within the Department of Education and Children's Services (DECS), Association of Independent Schools of South Australia (AISSA) or Catholic Education SA.
  • Department of Education and Children's Services Disability Services. Contact your local District Officer (see local telephone directories) or the State Office for general information. Telephone 8226 1527. Country callers should phone 1800 088 158.
  • Association of Independent Schools of South Australia Special Education Advisers. Contact the Special Learning Needs Coordinator. Telephone 8179 1400.
  • Catholic Education SA Special Education Consultants. Contact the Supervisor of Special Education. Telephone 8301 6600.

Books for parents

• Hassold, Terry J & Patterson, David 'Down Syndrome: A Promising Future Together', Wiley-Liss Inc, New York, 1999.
• Pueschel, Sigfried M 'A Parent's Guide to Down Syndrome – Toward a Brighter Future', Paul Brookes, Baltimore, USA, 1993.
• Selikowitz, Mark 'Down syndrome the facts', Oxford Medical Publications, Oxford, 1999.
• Stray-Gundersen, K, 'Babies with Down Syndrome: A new Parents Guide', Woodbine House, Bethesda, USA.

Books for children

• Bowman-Kruhm, Mary 'Everything You Need to Know About Down Syndrome', Rosen Publishing Group Inc, New York, 2000.
• Bryan, Jenny 'Living with Down Syndrome', Wayland Publishers, East Sussex, England, 1998.
• Cairo, Shelley 'Our Brother has Down Syndrome', Annick Press, Vancover, 1995
• Stuve-Bodeen, Stephanie 'We'll Paint the Octopus Red', Woodbine House, Bethesda, USA, 1998.
• Thompson, Mary 'My Brother Matthew', Woodbine House, Bethesda, USA, 1992.
• Wilson, Sue, 'Daniel', S Wilson, Perth, (undated).

General

• See our Links page - Disability

The information on this site should not be used as an alternative to professional care. If you have a particular problem, see a doctor, or ring the Parent Helpline on 1300 364 100 (local call cost from anywhere in South Australia).

This topic may use 'he' and 'she' in turn - please change to suit your child's sex.