disability; dystrophy; dystrophies; Duchenne; muscular; muscle; weak; scoliosis; gene; inherit; chromosome; X linked; carrier; genetic; Gower; Gower's test. ;
The Muscular Dystrophies are a group of muscle diseases which are caused by changes in genes. They are progressive - the weakness and disability becomes more of a problem as the child gets older. The pattern of muscle weakness can help work out which type of muscular dystrophy a child or young person has.
Information about Muscular Dystrophy
There is a great deal of information available on the Internet ranging from the genetic and cellular abnormalities to supports for boys, parents and siblings. The content of the sites listed below has been viewed, but the Women's and Children's Health Network (South Australia) cannot take any responsibility for information published on these sites.
- The Muscular Dystrophy Association of South Australia has a lot of information about living with Muscular Dystrophy.
- The Australian Muscular Dystrophy Association, which is based in Melbourne has a site which has extensive information, and the association provides support to people living with muscular dystrophy, including parents and other family members.
- MedlinePlus (National Library of Medicine, USA)
- Kid's Health (Nemours Foundation USA)
Resource in South Australia
- Novita (formerly the Crippled Children's Association of South Australia) - providing therapy, equipment and home support to South Australian children and young people with physical disabilities.
The information on this site should not be used as an alternative to professional care. If you have a particular problem, see a doctor, or ring the Parent Helpline on 1300 364 100 (local call cost from anywhere in South Australia).
This topic may use 'he' and 'she' in turn - please change to suit your child's sex.